Ella seems to be progressing a little bit each day but there are still plenty of things to worry about. I called Dr. Mulliken’s office to reschedule the dermabrasion of her nevus. For some reason, that no one seems to want to explain to us, Dr. Mulliken doesn’t want to schedule it (yet). I think he doesn’t want to do anything until the hemispherectomy is well behind us. In the meantime her nevus gets thicker, darker and rougher. I made an appointment for her to see a different pediatric cranio-facial surgeon at Mass General. Maybe he’ll have some insights other than “Well I’ve never seen this before.” It would be nice to have some feeling of being treated but that certainly isn’t the feeling we’ve had so far from the Cranio-facial team at Children’s. In the meantime therapists are coming and going on a daily basis, working on getting Ella to move as much as possible. Next week Ella has an evaluation set up for aquatic therapy. If that is appropriate for her, it might be fun. I hope all this therapy is helping. She seems to be proudly moving her head around from side to side which is new. This morning we noticed that the right side of her head is swollen and I’ve consulted with Dr. Sacco by phone who suggested getting in touch with Dr. Black. He is in clinic and practically completely unreachable. Ella is at least acting normally although this protrusion is worrying us. In short, the worries never end and feel like they never will.